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I found out that I was positive for the BRCA2 gene in May of 2014 after my 94-year-old father was diagnosed with prostate cancer. He was urged to get tested as there’s a history of pancreatic and prostate cancer on his side of the family and, sure enough, his test came back positive. I was sent to the high-risk clinic and made the decision to have my ovaries and fallopian tubes removed. A small tumour was found, and that was the beginning of a journey of more surgeries, chemotherapy, and a deep struggle with my mental health. I was frightened.

As a professional pianist, it was very important that I did everything possible during my chemotherapy to avoid neuropathy – tingling, pain, or even numbness in my hands and feet. After searching online and asking for advice from all the nurses and doctors who were treating me, I ended up using a very questionable and unproven preventative technique of holding ice packs in my hands during therapy. Thank goodness, it seemed to have worked.

Other side effects were more difficult to deal with. Prior to treatment I had a big, thick head of curly hair and, when it started falling out in the shower, it was very difficult. Losing my eyebrows and eyelashes was tough, too. I had fatigue, heartburn, ear infections, and a perforated ear drum, and a period of time where I was crying a lot. I comforted myself by reminding myself that things could always be worse. And I am so lucky to have had a wonderful support system: my amazing husband, dear friends who supported me daily with a meal train and phone calls, and my adult daughter and son, who called regularly and came in from Toronto and the UK to visit, lifting me up with their presence.

My treatment was isolating. I was told to treat this time as if I were in the COVID pandemic as I was immunocompromised. I couldn’t see anyone in person. I longed for some connection, and so attending the Look Good Feel Better (LGFB) workshop was a very welcome opportunity. I saw people in person there for the first time in months.

I attended because I wanted to have eyebrows. I was scheduled to be in a video that was being made about my parents’ architecturally designed home and this was for posterity. So I signed up with that singular purpose in mind.

What I found out was that LGFB is so much more than learning how to apply makeup. It nourished my soul, gave me hope for the future, and helped me feel like myself again – confident to face myself and others. I was struck by how positive the participants were and especially inspired by the facilitator, who shared with us that she was a cancer survivor of over 20 years. She had humour, vitality, and boundless energy – everything I was longing for. I removed my head covering there for the first time in public, baring my bald head, something I couldn’t even do in front of my husband. That was a feeling I can’t even describe. It took a lot of courage for me to do that. I left that session feeling positive, supported, and connected.

There can be silver linings to having cancer. It has forced me to look at life differently, to value friendships, family, and the little things in life and not let them pass me by. This journey puts life into perspective. It has given me an opportunity to reflect on my priorities and to make sure that I can make a difference in the world.

Last spring I attended my son’s graduation ceremony in London, England. And in the summer I hosted a thank-you party for all my beloved friends who supported me during my treatment. I was able to support a friend going through something similar with greater empathy. We will travel again. Life is short and unpredictable, and I want to make the most of it.

Getting cancer made me feel really alone in some ways. Like, no one else around me was losing their hair or going bald. Being bald made – still makes – me feel insanely unique. I didn’t know anyone my age going through cancer. I celebrated my 19th birthday at home, recovering from a tough round of chemo, while my friends headed out to bars to party and toast their 19ths. Having cancer was a lonely experience.

It was also such a shock. My entire family describes the day I got diagnosed with lymphoma as the most shocking day of our lives. Before, I was such a regular 18-year-old. I felt and seemed healthy. I went to the gym all the time – I was really into bodybuilding. I was in school studying hairdressing. I had a boyfriend. I had a part-time job. Like, so typical. I went from thinking my life was fine one day to being in the hospital the next. Getting chemo, losing my hair – it was all happening before I could register the shock.

My family has been so supportive through everything. I live with my parents and my two brothers, along with two bunnies and a dog. They’ve all been so great. My friends and cousin have also been so supportive. But no one really fully got what I was going through.

Going to a Look Good Feel Better (LGFB) workshop was one of the most helpful things for getting me to feel less lonely. I was nervous to go, but I’m so glad I did. My mom came with me. It was genuinely such a nice night out. Everyone was super nice and we all had some good laughs, like when no one knew I was wearing a wig and I just whipped it off. I was going through a hard time, and a lot of things sucked. Getting to go to a girls’ night, receiving free makeup, and having people help me was so awesome.

And the makeup was super fun. I’ve finished my treatment now, but I still don’t have my hair. Putting on both my wig and makeup helped me to feel prettier, and a bit more like myself. I don’t think I would’ve started wearing makeup if I hadn’t gone to the LGFB workshop. I like being able to put on my wig and makeup and to go out and feel OK. I was so scared to lose my hair, but it ended up being totally fine. I’m having fun with it and if anything, I feel more confident now because I have long, blonde, thick hair and when I go out, nobody really knows that it’s not mine. It’s true: when you look good, you do feel better. 

Getting diagnosed so young has definitely been scary. I wonder, is this going to affect me for a long time? I’m sure it will, right? I think about the checkups I’ll need, the precautions I’ll have to take, the things I’ll have to consider.

But it’s also given me a different perspective on things. I’m really grateful for the simple things now. Going to a restaurant with friends, or for coffee, or to the movies, or for a walk – these moments are so special now. If there are little things that you enjoy, just do them, you know?

Cancer runs in my family — it has affected six out of eight siblings, my mom, my aunt, my grandmother, my cousins, and even my niece and nephew. But I’ve never let it define me. I don’t even like to use the “C” word — I call it “the unwelcome intruder.” It infiltrated my body and so now we’re just working on getting it out of there. I don’t allow it to control me or have authority over my body.

Throughout my treatment, some things have stayed constant in my life, and this grounds me. I’ve kept working, because I love my job and it gives me a sense of normalcy. My children are there for me — I’m a single mom of four kids, 22-year-old triplet daughters and a 24-year-old son. I love going on walks with my little nine-year-old Havanese and reading psychological thrillers.

My faith has been another constant source of strength. When I had a recurrence of the unwelcome intruder, I prayed a lot. I was like, “I can’t go through this a second time. Lord, what are you doing?” And I received a message saying that this was not a journey I was to take alone — that this was going to be a community-based journey for me. I have a habit of isolating myself, especially during times of struggle. Thanks to this message that came through, I’ve been staying connected and sharing my journey, especially through the women’s connect group at my church. We all go through struggles in our lives, and my hope is that by sharing mine, it’ll help people to see their own challenges in a better light and to know they’re not alone or stuck. I know there’s an end to this.

It wasn’t just my church community, either. Once I decided to overcome my habit of cutting myself off from others, I was surprised at how vast this community travelled. More and more people outside of my church, outside of my faith, have come to walk alongside me. They send texts, stop by, bring me meals, go for walks with me, and even attend appointments. It has been really uplifting, encouraging, and inspiring. I feel held and supported.

This community extends to Look Good Feel Better (LGFB) as well. Losing my hair was a big thing for me. I cried and cried for weeks on end in anticipation. I just turned 61, but I don’t feel old —and I didn’t want to look old, or sick. My hair started falling out just two days before my LGFB workshop. I felt really shut down. I almost didn’t go. But I’m so glad I did, because the workshop really helped me get through it. 

I loved how the volunteer talked about hair loss — so calmly, so casually. She’d rip off her wig, put on another, and then switch to a bandana. Something opened up in me when she was doing that. It felt so freeing. I realized I was no longer stuck to my hair, and that it was okay that it was gone. My hair falling out felt like the end of the world for me, but the workshop helped me realize that hair is just hair. It doesn’t define who I am. This new perspective changed the entire trajectory of my journey. The workshop gave me my life back, basically. It was so empowering. As a bonus, I’ve been having a lot of fun with wigs, trying different hair styles and colours.

My positive mindset has really helped me through this journey. Prayer, connection, community — these have been instrumental. And I really do treat this as a journey — not just a medical, physical journey but also a mental, spiritual, soul-deep transformation. I don’t have to worry about the unwelcome intruder in my body because that’s what my medical team does. My responsibility is to make sure that I’m staying as healthy as possible, physically and mentally. I’m not just focusing on the cancer, but on making myself better. 
 

Choosing Head Coverings

Care and Maintenance

Special Considerations

Scarf Styling and Techniques

Still have questions? We cover these topics and a LOT MORE in our workshops.

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Understanding Your Wig Options

Choosing & Purchasing a Wig

Wig Fitting and Comfort

Managing Wig Comfort Issues 

Styling and Customization

Caring for a Wig

We’re here for you.

Find community and practical advice in our Wigs & Scarves workshop.

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Let’s Listen

Dr. Deanne Simms, Clinical Psychologist will speak to the mental health benefits of managing appearance during cancer, the impact of the loss of control and the connection between hair and identity, specifically for BIPOC women.

Dianne Austin, Cancer Survivor and Entrepreneur, will then share her story of how her personal experience has led her to create a social enterprise to meet gaps in supporting Black women facing hair loss. 

Discussions with Dr. Deanne Simms & Dianne Austin

YouTube thumbnail graphic titled ‘Black Women & Wigs’ with photos of Dr. Deanne Simms and Dianne Austin.
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Our Speakers

Dr. Deanne Simms

President and CEO, ThriveSpace Health and Wellness

Dr. Simms is a senior Clinical Health Psychologist who has a well-established career providing specialized care for children, adolescents and adults with complex mental and physical health challenges or conditions. In her work, Dr. Simms works collaboratively with her clients while utilizing evidence-based, cognitive behavioral interventions within a measurement-based care framework. In her work ranging from primary to tertiary care settings across 4 Canadian provinces, Dr. Simms has worked to build and evaluate evidence-based practices and programs. Dr. Simms strives to support the health and well-being of the individuals she works with, while enhancing and improving service delivery in both the private and public health sectors. 

Dr. Simms is a passionate leader whose responsibilities have extended to provincial and national health leadership. Dr. Simms is an innovator who drives change, and is a sought-after consultant for system-level projects. Using her scientific background, combined with her dedication to enhancing and extending health service delivery, Dr. Simms contributes meaningfully to boards, steering committees, working groups and initiatives aimed at transforming the health care landscape through disruptive, data-driven innovation. Dr. Simms is the President and CEO of ThriveSpace Health and Wellness, a company which focuses on delivering and enhancing digital health services. In this space, Dr. Simms consults with individuals, clinicians, organizations and health systems to augment and enhance service delivery. Dr. Simms is passionate about ensuring individuals everywhere can access the right care, at the right time, in the way that most suits their needs.

Dianne Austin

Co-founder and CEO of Coils to Locs

Dianne Austin, B.S. is the co-founder and CEO of the startup, Coils to Locs, a direct to hospital distributor of high-quality coily, curly hair prosthesis (wigs) for Black women or any woman with highly textured hair. Coils to Locs is at the forefront of addressing an unrecognized health care disparity that impacts Black women experiencing chemotherapy-related hair loss: The lack of coily, curly wigs that are available at cancer centers in the U.S. that can be purchased with health insurance reimbursement.

A five-year breast cancer survivor and thriver, Dianne is passionate about healthcare equity issues given her personal experiences and that of family and friends within the healthcare system. 

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“I liked getting information that was specifically for teens and connecting with other people who understood what I was going through in the teen workshop.”

Maddie W., Workshop Participant

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“I didn’t want to invest in a wig but after reviewing these resources and attending the LGFB Hair, Wigs & Scarves workshop, I changed my mind. It will be a good option to improve my self image and look and feel better. Now I’m in the process of buying one. Thanks!”

Linda G., Workshop Participant

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Dealing With Hair Loss During Cancer Treatment

For some people, losing their hair can feel even harder than getting a cancer diagnosis. And that’s totally valid. Your hair might feel like a big part of who you are—it’s how you express yourself, feel confident, or just feel like you. Since hair loss is a visible sign of illness, it can mess with how you see yourself and how others see you. You might feel anxious, vulnerable, or just off.

But here’s the good news: Hair loss is temporary

And there are lots of things—like wigs, hats, or even totally new looks—that can help you feel more confident while your hair takes a break.

Whether you want to keep things feeling familiar or try something bold and new, we’ve got a few tips to help you through it.

 

Before Your Hair Starts to Fall Out

Not everyone loses all their hair, but depending on your treatment, your hair might thin or fall out completely.

Ask your team

Your oncology team can give you a heads-up on when it might happen.

Buy Before

If you’re thinking about getting a wig that looks like your current style, it’s a good idea to start shopping before treatment begins.

Lots of Hair Selfies!

Take some pictures of your hair from all angles to bring with you when you’re picking one out—it helps with finding the right colour and style.

Thinking About Shaving Your Head?

Watching hair fall out in clumps can be really tough emotionally. That’s why some people choose to shave it before it gets to that point.

If you decide to shave, don’t go all the way down to the scalp—it can irritate your skin. Instead, cut your hair to about 1/8 of an inch.

A super short cut can help reduce scalp sensitivity and make the process feel a little more in your control.

Dealing With Thinning Hair

If your hair’s starting to thin, here are some ways to take care of it:

Don’t dye or bleach it—your hair is more fragile right now

Use a moisturizing shampoo and conditioner to help soften brittle strands

Try going shorter—it can make thinning hair less noticeable and puts less stress on the roots

Avoid heat styling tools (like blow dryers and curling irons), hairsprays, and products with alcohol

Sleep on a satin or silk pillowcase—it’s way gentler on your hair and scalp

When You've Lost Most or All of Your Hair

Hair usually falls out gradually and your scalp may start to feel sore or sensitive.

– You can cut your hair to 1/8 of an inch at this point to avoid the emotional stress of watching it fall out in chunks.

– A soft sleep cap (worn day or night) can help catch hair as it falls and keep your head warm and comfy.

When your hair’s gone, your scalp might feel dry or itchy. Take care of your scalp.

You can:

– Gently massage your scalp with facial moisturizer to help with dryness and improve circulation. This helps reduce itchiness and makes it easier (and more comfy) to wear a wig, hat, or scarf!

Hair loss is hard…

but remember, it’s not forever. You’re still you, with or without hair. And whether you rock a wig, scarf, beanie, or go totally natural, the most important thing is feeling good in your own skin.

Not everything has to change during treatment.

Get tips about nails, skincare makeup and hair in our Teens Workshop.

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